Tina Parciak
Tina Parciak has a background in Medical Informatics and has been part of the MS Data Alliance since its very beginning, bringing the topic of harmonisation of real-world data in MS forward.
Within her current PhD studies within the research group of biomedical data sciences at the Biomedical Research Institute and Data Science Institute at UHasselt, she is developing and orchestrating new technologies and strategies for harmonisation for real-world MS data sources. One of her research interests lies in the adaptability of the OMOP common data model (OHDSI) for real-world data coming from registries. She is the lead of the OHDSI Registry workgroup.
Publications
COVID-19 in people with multiple sclerosis: A global data sharing initiative
Multiple Sclerosis Data Alliance - A global multi-stakeholder collaboration to scale-up real world data research
Associations of DMT therapies with COVID-19 severity in multiple sclerosis
The MSDA Catalogue: enabling web-based discovery of metadata from real-world multiple sclerosis data sources
Severity of COVID19 infection among patients with multiple sclerosis treated with interferon-β
Updated results of the COVID-19 in MS Global Data Sharing Initiative: anti-CD20 and other risk factors associated with COVID-19 severity
The journey of data within a Global Data Sharing Initiative: A federated three-layer data analysis pipeline to scale up multiple sclerosis research
Introducing a core dataset for real-world data in multiple sclerosis - recommendations from a global task force